Monica Weldon Consulting
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Monica Weldon Consulting

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  • Home
  • My Experience
  • Publications
  • How I Can Help
  • Strategic Planning
  • In The News
  • Podcasts

My Experience

Public Speaking

Public Speaking

Public Speaking

My experience centers around delivering a dynamic and well-prepared message on topics such as patient engagement, strategic planning and building strong teams for the rare disease nonprofit sector. 

Teaching

Public Speaking

Public Speaking

Creating topics that are important for your audience is critical.  Understanding how to set objectives and goals for your meetings are imperative to meeting audience expectations and your meeting goals. 

Event Planning

Public Speaking

Event Planning

Successful events are key to driving an organization's mission within a set budget. Understanding the specific aims and outcomes are critical in having a successful event. 

Honors

Named Top 20 Rare Disease KOL's by Global Shakers 2020

Named Top 20 Rare Disease KOL's by Global Shakers 2020

Named Top 20 Rare Disease KOL's by Global Shakers 2020

20 Rare Disease Champions to Know

Patient Empowerment Network Spotlight 2019

Named Top 20 Rare Disease KOL's by Global Shakers 2020

Named Top 20 Rare Disease KOL's by Global Shakers 2020

Spotlight On Monica Weldon – A Rare Disease Advocate

WEGO Health Nominee 2019 & 2020

Named Top 20 Rare Disease KOL's by Global Shakers 2020

WEGO Health Nominee 2019 & 2020

 Monica Weldon ` Patient Leader

Written Recommendations, Reviews & invitations

Congressman McCaul's Recommendation (pdf)

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Thank You - ANA2019 (pdf)

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CBD National Keynote 2020 (PDF)

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NINDS Noprofit forum 2020 (pdf)

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Patient Forum Invitation - Weldon (pdf)

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Invitation to Join the NIH/NINDS Nonprofit Forum (pdf)

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Weldon - Speaker Confirmation Q1 Productions (pdf)

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ASGCT Annual Meeting Thank You - Monica Weldon (pdf)

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2020 Speaking Engagements

COVID19 and Infectious Disease Virtual Meeting 2020

The National Institute of Neurological Disorders and Stroke (NINDS) Nonprofit Forum 2020

COVID19 and Infectious Disease Virtual Meeting 2020

 Topic: The Challenges Around Living and Coping with COVID19 and Special Needs Populations 

ASGCT 23rd Virtual Annual Meeting 2020

The National Institute of Neurological Disorders and Stroke (NINDS) Nonprofit Forum 2020

COVID19 and Infectious Disease Virtual Meeting 2020

 Topic: “Germline gene editing: A patient perspective.”  

The National Institute of Neurological Disorders and Stroke (NINDS) Nonprofit Forum 2020

The National Institute of Neurological Disorders and Stroke (NINDS) Nonprofit Forum 2020

The National Institute of Neurological Disorders and Stroke (NINDS) Nonprofit Forum 2020

 Panel on Clinical Trials: Precision Approaches to Rare and Not So Rare Disorders with Breakout Discussion  

US National CBD Summit Washington DC January 2020

Patient Registries, Real World Data Evidence and HEOR Summit Miami, Florida January 2020

The National Institute of Neurological Disorders and Stroke (NINDS) Nonprofit Forum 2020

 It was an honor to be the Keynote at the first US National CBD Summit in Washington DC  

Patient Registries, Real World Data Evidence and HEOR Summit Miami, Florida January 2020

Patient Registries, Real World Data Evidence and HEOR Summit Miami, Florida January 2020

Patient Registries, Real World Data Evidence and HEOR Summit Miami, Florida January 2020

 From Competition to Collaboration — Improving Industry Habits for Funding and Sustaining Registries  

Past Speaking Engagements

RDLA Rare Disease Congressional Caucus December 2019

Rare Disease Clinical Development and Access Summit 2019

Rare Disease Clinical Development and Access Summit 2019

Moderator: Discussion on Economic Burden of Rare Diseases

Rare Disease Clinical Development and Access Summit 2019

Rare Disease Clinical Development and Access Summit 2019

Rare Disease Clinical Development and Access Summit 2019

 CASE STUDY ● Bringing Data Back to Patients — Empowering Patients through Data Sharing

Rare Disease Clinical Development and Access Summit 2019

Rare Disease Clinical Development and Access Summit 2019

Rare Disease Clinical Development and Access Summit 2019

Optimize Reimbursement and Access Through Proactive Planning in Clinical Development

I AM BIO Podcast 2019

ANA ~American Neurological Association 2019

Rare Disease Clinical Development and Access Summit 2019

Guest on I AM BIO by  The Biotechnology Innovation Organization. Interviewed by former Congressman James Greenwood, President/CEO of BIO

HOSA Texas Region 7 ~ 2019

ANA ~American Neurological Association 2019

ANA ~American Neurological Association 2019

Sharing Beckett's story to 900+ Health Occupation students about the different opportunities available in the health field, including legislative and data technology.

ANA ~American Neurological Association 2019

ANA ~American Neurological Association 2019

ANA ~American Neurological Association 2019

Advocacy in Action: The Perspective of an Academic Neurologist on the Hill.

BIO DATA World West 2019

NIH/NINDS Nonprofit Forum 2019

NIH/NINDS Nonprofit Forum 2019

Real World Data For Rare Diseases: How to make drug development more feasible for Rare Diseases and improve regulatory decision making. 

NIH/NINDS Nonprofit Forum 2019

NIH/NINDS Nonprofit Forum 2019

NIH/NINDS Nonprofit Forum 2019

Discussing Cell and Gene Therapy for Rare Diseases and Big Data.

BTG Houston Family Meetup 2019

NIH/NINDS Nonprofit Forum 2019

8th Annual Life Science Strengthening Patient Advocacy Engagement Conference 2019

Teaching the importance of Advocacy and Research.

8th Annual Life Science Strengthening Patient Advocacy Engagement Conference 2019

8th Annual Life Science Strengthening Patient Advocacy Engagement Conference 2019

8th Annual Life Science Strengthening Patient Advocacy Engagement Conference 2019

Moderator: Discussing challenges in accessing patient communities, mental health needs, strategic ways to engage with patient communities and the challenges around splinter groups, educating the general population; including rural and diverse populations. 

Five Minutes with Monica Weldon

Monica explains why being a citizen scientist is critical in helping advance the search for treatments.

New Era of Patient Advocacy

Monica Weldon is a rare disease advocate whose son, Beckett, has SYNGAP1. Beckett was one of the first people diagnosed with SYNGAP1, and since that day, Monica has not stopped talking about it. Advocacy has become Monica's platform and she believes that advocating and telling your story is one of the most important things that a newly diagnosed patient or family member can do. She says that it takes one person to start the movement as long as you never stop sharing your story.   Get involved in

Two Moms Fighting For Two Different Rare Causes

Interview with Chip Baker - The Success Chronicles Monica Weldon and Kristin Smedley discuss their experiences of fighting for the rare causes that they have come across in their family. @monicaweldon son...syngap @kristinsmedley sons... blindness Two great stories of mothers fighting to make a difference in our world. 

Building Your Scientific Communiy

Watch now my presentation on how to build your scientific community. 

Making Goals with your Scientific Advisory Board

 At the National Organization for Rare Disorders (NORD) Rare Disease & Breakthrough Summit in Washington D.C., Rare Disease Report spoke with Monica Weldon, founder of Bridge the Gap – Syngap Education and Research Foundation about her advice for nonprofit organizations wanting to create goals for their scientific and medical advisory board members.
Check out this great video

Building Disease Specific Educational Tools and Resources

With Monica Weldon, Kristin Smedley, and Carrie Ostrea. While cumulatively there are an estimated 7000 rare diseases, patients in each of those rare diseases typically do not have an opportunity to meet others living with the same challenges.  This presentation will explore the impact of disease related educational information and suggest ways to transfer that same impact to the rare disease community by way of collaboration with medical students and rare disease patient groups. 

2018 Epilepsy Pipeline Conference

 Monica Weldon's Presentation is at 1:30 - 1:50  View the conference agenda at https://epilepsy.com/pipeline2018.  Every two years, the Epilepsy Foundation holds its Pipeline Conference to bring together decision-makers with a stake in the field of epilepsy treatment, therapeutic innovation, and product development. This exciting meeting provides a forum for surveying new therapies in development, exploring future advancements, and encouraging collaborations and partnerships. 

Innovative Patient Education & Support Options

Bridge the Gap – SYNGAP Education and Research Foundation's President/CEO, Monica Weldon, will share her personal diagnostic journey that led her to work full-time in rare disease advocacy and to form an organization to support the SYNGAP1 community. Dawn Laney, a clinical genetic counselor at Emory University and founder of ThinkGenetic, will present ThinkGenetic's approach to serving and empowering people living with a genetic disease. 

Teacher, Consultant, Speaker

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  • Home
  • My Experience
  • Publications
  • How I Can Help
  • Strategic Planning
  • In The News
  • Podcasts