Pioneering Change in Rare Disease Advocacy and Life Science Policy
Leveraging over two decades of experience in life sciences, health legislation, biotechnology, and rare disease advocacy to shape a better future
About Monica Weldon Consulting, LLC
Mission Statement
Empowering patients, policymakers, and industry leaders through strategic insights, innovative solutions, and a commitment to making a difference.
Core Values
Advocacy, Innovation, Collaboration, Integrity.
Meet Monica
Monica Weldon's journey is one of resilience, advocacy, and unwavering determination in the face of adversity. Born out of a mother's love and a fierce desire to help her son, her story is an inspiring testament to the power of community, innovation, and relentless pursuit of change.
In November of 2012, Monica's life took a pivotal turn when her twin son, Beckett, became the first to be diagnosed with the rare gene mutation SYNGAP1 at Texas Children's Genetics Clinic. At just four months old, Beckett's developmental delays became apparent, prompting Monica and her family to embark on a quest for answers and solutions to help their son thrive.
Fueled by a mother's instinct and a thirst for knowledge, Monica began documenting Beckett's journey through a blog, sharing their experiences, challenges, and triumphs with a growing community of parents and caregivers. This online platform soon became a powerful support network, providing solace, guidance, and hope to families facing similar struggles.
Monica Dudley-Weldon, MScLaw
President
Services Offered
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Rare Disease Advocacy
Consulting for rare disease patient advocacy groups and biotech/pharma companies providing strategic direction and policy support.
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Health Legislation and Regulatory Consulting
Advising on health legislation, regulatory compliance, and navigating complex healthcare landscapes.
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Strategic Development and Business Consulting
Helping organizations in the healthcare sector with strategic planning, business development, and operational efficiency.
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Clinical Research and Trial Design
Provide expert guidance on clinical trials for rare diseases, offering tailored support in planning, protocol development, and recruitment to ensure reliable results and improved patient outcomes.
What People Are Saying
“Rarely do you find a more hard-working professional or advocate than Monica, who combines an understanding of policy issues, an ability to make their way through the labyrinth of bureaucratic processes in the government and health sectors, a keen political sensibility, and persistence despite all odds? These qualities get a further turbocharge from her engaging, affable personality.”
Mark Lenker, Principal at TruSynergy
“Monica has become a powerhouse in rare disease advocacy and research. Her work has been the catalyst for significant advances in neuroscience, and her willingness to share her knowledge and expertise with others creates a ripple effect of excitement within the patient advocacy community.”
Amy Leitman, President at NTMir
“Monica has shown great dedication to her profession, and I commend her hard work. She exhibits an immense passion for the issues she works for and wishes to utilize her skills to benefit all.”
The Honorable Congressman Michael McCaul, (TX - 10)
Industries Served
Industries Served
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Providing consulting services to patient advocacy groups, non-profits, and research organizations dedicated to rare diseases.
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Collaborating with the Department of Defense, biomanufacturing firms, and industries engaged in bio-weapons and defense technology.
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Advising lawmakers, regulatory bodies, and healthcare providers on policy, compliance, and legislative matters.
Let’s work together
Interested in working together? Fill out some info and we will be in touch shortly! We can't wait to hear from you!
