Biotechnology | Applied Legal Professional | Strategist | Life Sciences Consultant | Government Contractor | KOL | Author

Founded in 2016

About

Monica Weldon's journey is one of resilience, advocacy, and unwavering determination in adversity. Born out of a mother's love and a fierce desire to help her son, her story is an inspiring testament to the power of community, innovation, and relentless pursuit of change.

In November of 2012, Monica's life took a pivotal turn when her twin son, Beckett, became the first to be diagnosed with the rare gene mutation SYNGAP1 at Texas Children's Genetics Clinic. At just four months old, Beckett's developmental delays became apparent, prompting Monica and her family to embark on a quest for answers and solutions to help their son thrive.

Fueled by a mother's instinct and a thirst for knowledge, Monica began documenting Beckett's journey through a blog, sharing their experiences, challenges, and triumphs with a growing community of parents and caregivers. This online platform soon became a robust support network, providing solace, guidance, and hope to families facing similar struggles.

Determined to drive change and improve outcomes for those affected by SYNGAP1-related disorders, Monica took a bold step forward in 2014 by founding the SYNGAP1 Foundation. This groundbreaking organization became the first of its kind, dedicated to spearheading research, raising awareness, and advocating for advancements in the field.

Despite her long-standing career in education, spanning 23 years teaching secondary science, Monica chose to retire in 2016 to devote herself fully to the mission of the SYNGAP1 Foundation. As its visionary leader, she worked tirelessly to build programs, foster partnerships, and drive innovation, serving as the Primary Investigator on the SYNGAP1 Patient Registry & Natural History Study.

In addition to her foundation work, Monica's expertise in business, strategic development, and legal affairs led her to establish Monica Weldon Consulting, LLC. Through this platform, she became a leading voice in rare disease advocacy, collaborating with lawmakers, pharmaceutical companies, and healthcare stakeholders to shape legislative and regulatory health policies. She currently is a Life Scientist hand-selected to work through Leidos, in the Assistant Secretary of State in the Department of Defense in R&E in Industry Base Policy to execute the Biotechnology Manufacturing Strategy on a $1B project plan over the next six years.

Monica's impact extends far beyond the boardroom. She is a prolific author, public speaker, and consultant on rare disease business strategies, leveraging her platform to advocate for policy change at both the federal and state levels. Her scientific publications and editorial contributions have earned her international acclaim, solidifying her position as a key opinion leader in the field.

Educationally, Monica holds a bachelor's degree in biology/psychology from East Texas Baptist University and a master's in science law from Northwestern University Pritzker Law School, specializing in healthcare regulatory and legislative policy. She is a proud mother of five children, including Beckett and Pyper, and grandmother to Ella.

Monica's tireless advocacy efforts have not gone unnoticed, garnering her numerous award nominations and accolades, including being named one of the "Top 10 Most Woman Influential Leaders of 2022" by Era Industry Magazine. Her unwavering commitment to making a difference in the lives of those affected by rare diseases continues to inspire hope and drive progress, leaving an indelible mark on the world of healthcare and beyond.

Awards & Recognitions

  • Monica Dudley-Weldon has been recognized as a 2024 honoree in the prestigious Marquis Who's Who directory. This honor highlights Monica's outstanding contributions to life sciences, health policy, or biomanufacturing], where she has consistently demonstrated excellence and leadership. With a career marked by innovation, strategic development, and a deep commitment to advancing the industry, Monica sets the standard in her field. This recognition is a testament to her unwavering dedication and impact on the global healthcare.

  • Monica Dudley-Weldon, Former President, CEO, and founder of SYNGAP1 Foundation, is a true professional in a challenging and competitive business. She has stood on the same podium as world-renowned corporate and key opinion leaders. As an advocate, she is considered the barometer for what an individual should strive to become.

  • Monica is recognized for her academic excellence as a 2021 inductee into the Honor Society at Northwestern University Pritzker School of Law. This prestigious honor was awarded for maintaining an outstanding A average while earning a Master of Science in Law degree. Monica's dedication to academic success reflects her commitment to mastering the complexities of law and its intersection with science, technology, and policy. This achievement underscores her passion for lifelong learning and excellence in legal education.

  • Monica Weldon was a proud nominee for the 9th Annual WEGO Health Awards in 2020. Recognized across multiple categories—Advocating for Another, Best in Show: Facebook, Healthcare Collaborator, Hilarious Patient Leader, and Patient Leader Hero—Monica's dedication to patient advocacy and healthcare collaboration shines through. These nominations celebrate Monica's impactful work in the health community, where she has consistently demonstrated compassion, leadership, and a unique ability to engage and inspire others.

  • In recognition of Rare Disease Day 2020, Global Shakers honored Monica Weldon as one of the Top 20 Rare Disease Key Opinion Leaders (KOLs). This prestigious acknowledgment celebrates Monica's unwavering commitment to raising awareness for some of the world's rarest diseases. As a dedicated patient advocate, Monica continues to make a profound impact in the rare disease community, championing the needs of patients and families through education, advocacy, and collaborative efforts. Her inclusion in this list underscores her leadership and influence in the global healthcare landscape.

  • We are proud to announce that Monica Weldon was a nominee for the 8th Annual WEGO Health Awards in 2019, recognized in the categories of Hilarious Patient Leader and Patient Leader Hero. These nominations celebrate Monica's unique ability to combine humor with heartfelt advocacy, making her a standout figure in the patient community. As a Patient Leader Hero, Monica's dedication to empowering others and driving positive change in healthcare is evident. Her work continues to inspire and uplift, leaving a lasting impact on those she serves.

  • Monica Weldon was honored as a nominee for the 7th Annual WEGO Health Awards in 2020, recognized in three categories: Hilarious Patient Leader, Patient Leader Hero, and Best in Blog. These nominations reflect Monica's exceptional ability to engage and uplift the patient community through humor, heartfelt advocacy, and impactful storytelling. As a Patient Leader Hero, Monica's work not only educates but also inspires, while her blog has become a trusted resource for those navigating the challenges of healthcare. Monica's dedication continues to make a significant difference in the lives of many.Item description

  • Global Genes™ would like to congratulate the following 2016 RARE Champion of Hope Nominees. These individuals and organizations have been recognized by their peers because of their extraordinary efforts in Advocacy, Science, Medical Care and Treatment, and Collaborations in Science.

  • Monica Weldon was selected as a DIA 2016 Patient Scholar, an honor that recognizes her commitment to advancing patient advocacy within the healthcare industry. As a Patient Scholar, Monica had the opportunity to collaborate with leading professionals, sharing her unique insights and experiences to help shape the future of healthcare. This recognition underscores Monica's dedication to empowering patients and ensuring their voices are heard in critical discussions about healthcare innovation and policy.

  • Monica Weldon was honored with a nomination for the 4th Annual WEGO Health Awards in 2015 in the category of Best in Blog. This recognition highlights Monica's talent for creating compelling and informative blog content that resonates deeply with readers. Her blog serves as a powerful platform for patient advocacy, offering insights, support, and inspiration to those navigating the complexities of healthcare. Monica's dedication to sharing her journey and knowledge has made her a trusted voice in the community.

  • Global Genes™ would like to congratulate the following 2015 RARE Champion of Hope Nominees. These individuals and organizations have been recognized by their peers because of their extraordinary efforts in Advocacy, Science, Medical Care and Treatment, and Collaborations in Science.

  • In 2003, Monica Weldon was nominated as an Educator Astronaut, a prestigious recognition that highlights her dedication to education and passion for space exploration. This nomination underscores Monica's commitment to inspiring future generations in STEM (Science, Technology, Engineering, and Mathematics) fields. As an Educator Astronaut nominee, Monica demonstrated the qualities of a leader and educator with the potential to bring the wonders of space into the classroom, fostering curiosity and a love for learning among students.