Ensuring Parity through Individualized Care for Rare Disorders
A comprehensive legislative approach to ensuring coverage parity for patients with rare genetic conditions in accessing specialists, medicines, and other necessary items and services within Medicaid. EPICrd was developed by advocacy group leaders from the rare disease community to address challenges in Medicaid access that have a negative impact on treatment.
What is EPICrd?
Advocacy group leaders collaborated to develop comprehensive federal legislative language to ensure coverage parity for patients with rare genetic conditions in accessing specialists, medicines, and other necessary items and services within Medicaid.
Innovation in treatments, diagnostics, equipment, and other technologies supporting individuals with rare genetic conditions is outpacing Medicaid access. Innovation without fair access, however, will not help patients and their families. Discriminatory anti-innovation policies are preventing those with chronic illnesses and disabilities from obtaining medically necessary interventions – including access to experts in rare disorders.
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EPICrd Team
Dean Suhr - President MLD Foundation
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Jay Greissing
Sr. Director Government Affairs - BioMarin
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Team EPICrd
One of our many Hill Visits!
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Team EPICrd
Strategic Congressional Visits to Capitol Hill
